So disappointed in people. I scheduled a mover today to help me with some heavy boxes. This person was well aware of my medical condition. In normal times this is a move I’ve done many times alone. But times are different now. I have a catheter in my chest. My kidneys aren’t working which affects my stamina. I can’t hydrate…
Just got my results back at 5:23am. Hemoglobins at 7.5. Unsure if they’ll find this level acceptable for a discharge today. They really wanted at 8+. We will find out soon enough. I’m guessing they’ll give me a 4th transfusion + dialysis today + 10,000 units of Epogen. The body is a miraculous although sometimes frustrating machine.
So some updates. The MRI results came back and they were NEGATIVE. Miraculously, my right knee is almost back to normal without any treatment. I have near full mobility and I’ll be able to do leg workouts at the gym as soon as tomorrow. My right quad atrophied and it was likely made worse by dialysis zapping the protein from…
So I’m anemic again. My hemoglobins plummeted to 6.3 yesterday. They gave me a blood transfusion and my hemoglobins didn’t even move lol. Registered 6.3 again. Usually this means someone is losing blood at the same time but they cannot find any blood loss anywhere in my body. Very bizarre. The second blood transfusion got me to 7.0. They may…
Update : Once again my hemoglobins are low so I’m getting my 5th & 6th blood transfusions. The x-ray came back and the doctor said it appears I have a “bone infarct.” From my understanding this means the bone may be cutting off blood supply which the doctor said “can be very painful.” Duh. My right foot has blown up…
I can’t believe I am fucking disabled. I can’t even move from a bed to a wheelchair. I doubt I’ll ever dunk a basketball again. I doubt I’ll ever play basketball again.
The way my body is falling apart more and more every day is really making me think the powers that be don’t want me to be here anymore. Literally doing everything I’m supposed to and it doesn’t matter. My body is failing me.
So without being a medical expert, it’s obvious that something is wrong with my right leg beyond atrophy. I am guessing my quad tendon ruptured spontaneously which apparently is a side effect of end stage kidney disease. I can’t bend my knee fully and my right knee buckles if I put too much pressure on it. I have dialysis treatment…
I had a rough dialysis session today. My blood pressure skyrocketed at the end of treatment and a panic attack set in. Lightheaded, dizzy and short of breath, Cloud stayed in my arms until it passed. Just looking at her cute little face is sometimes enough to alleviate an attack. Who said a service dog (in training) can’t be small…
When you are living with end stage kidney failure you literally have good days and bad days. Your body is often out of your control with side effects and symptoms. I can tell today is going to be a good day as I’m mostly pain-free right now.